Can I be honest for a moment? That girl above is my daughter. My baby girl. She is 10 years old. Some days, she looks a lot older to me than she really is. Life with a disease forces you to grow up a little faster. I like to talk a lot about all the things she can do, she can eat, she can be, even with the life long diagnosis of type 1 diabetes. But I’m going to let you in on a secret…
Sometimes I get scared. Sad. Fucking angry. As much as I like to tell you she can do anything, the reality is there are still things she can’t do. See, when I was 10 years old, the greatest day of the week was Saturday. On Saturday morning, I would wake up, run into the kitchen, pour myself a bowl of my favorite Cap’n Crunch Crunch Berries cereal with milk, maybe add a banana, and sit down and watch TV. I didn’t need to wake up mom. In fact, I think she liked Saturdays just as much because she could sleep in a little. I was able to do things for myself.
Breakfast at our house now requires finger pokes and blood tests and a breakfast bar or a measured cup of “healthy” cereal (because the sugary stuff plays HAVOC with her blood sugar, all though we occasionally sneak one in for her), a measured cup of milk, and a banana only on occasion if my wife and I are feeling adventurous, because banana’s make us chase highs for hours.
Fair warning, this post is disjointed. We had a bad week in the type 1 world this week. And it wears us down sometimes. I appreciate you allowing me this space to vent a little. Thank you. When I hear about other children suffering, or of families mourning, it reminds me just how close we come. Every day. And I remember why I started this page. To let you in. Show you. Hope that you will join us in the fight to eradicate this horrible disease.
Seeing video like this breaks me up inside
Knowing that an 8 month old baby died this week because the Dr assumed the baby had the flu and sent them home crushes me. How fucking hard is it to do a damn finger prick test? Why isn’t this mandatory yet? My wife and I do 12 or more a day! Is it cost? Insurance companies? How many more children need to die from “flu like” symptoms? If a child comes in with the flu, CHECK HIS BLOOD SUGAR LEVEL!
I apologize. But knowing that in different circumstances, if my wife didn’t know what to look for, if she didn’t already know for sure what it was, and had we gone to the Dr’s office instead of the ER, well, who knows…
I remember being a kid and taking off on my bike by 10 am, and being home for dinner. Playing with friends all day. Stopping at 7/11 for a Big Gulp, or Thrifty’s for an ice cream cone. Those things are still possible. Just… harder. More… dangerous. Everything requires planning. Supplies. Education. Do the other friends know what to look for? Would they know what to do? There aren’t anymore spontaneous trips to the fro-yo place or to Baskin Robbins. Those trips require planning. Timing needs to be right. We don’t like to double stack insulin often. So we plan those trips. We don’t tell the kids, so they think it’s a surprise, but all the details have been worked out already. Shhh, that’s a type 1 parent secret.
Innocence lost. I talk often about just letting her be a kid. And as far as she knows, she is. But I know better…
Know the warning signs. And if you’re concerned, ask, no, DEMAND a blood glucose test
I’ve included a new page on my site with the signs here: Type 1 Warning Signs
Hug your children