I will never know what it is like to live life with type 1 diabetes. I will never know how fuzzy, off, and out of focus a 400 feels, and I will never know how disorienting and scary a 25 feels. As often as I ask, as often as I have had it explained to me, as often as I have witnessed these, and with as many diabetics as I have spoken with, I will still never truly understand.
On our Facebook page this week, I have been doing a series of screen captures of our CGM graph from overnight to show why we do night checks. In this graph above, you can clearly see that at 8pm she was low, at which point we gave her carbs. When we went to bed at 10 and checked her, she was sitting comfortably at 150, a good number for us for night time. My wife woke up at midnight to check her and she had gone up, a bounce back from the carbs administered at 8, she bolused her. Raven woke me up at 2, and Stella was hovering around 200 so I bolused again, and she woke up at a great 133 ready to start her day. A question came up though.
In January of 2013, we experienced a massive shift in our daughter’s blood glucose numbers. Her overnight numbers skyrocketed, and we were getting unexplained, random, and unshakeable highs. The reason? Puberty. She has experienced tremendous growth over the last year, and is now 5 feet tall. Just between her June and August Endo appointments, she shot up an inch and 4 pounds. Since January 2013, we have been making constant adjustments to basal rates to try and keep her BG numbers in check. Her A1C test result that January (which would have been for the 3 months prior) was our best ever at 6.9. Her next one 3 months later, all though still great for puberty, was 7.3, and since then we have gotten her down to 7.1 and working or butts off to get her there. Fast forward to last Thursday. More »
Today was one of those days. A “perfect storm” in the diabetic world. And I blogged nervously through the whole thing on our Facebook page. I feel the need to put it all in one place, and explain a little more what is happening as we go through the day. The image above was our starting point. We use a technology which enables us to remotely watch the data generated from my daughters Dexcom. For more info on this, click “CGM in the Cloud”.
Our daughter uses an Animas pump to provide her insulin delivery. And the insulin we use is Humalog. For us (different people have different results) we find that we only get 2-2.5 days of use out of the Humalog during the summer before we require a site change. The heat causes the Humalog to lose it’s effectivity. Today was day 3. Why? Because she had great numbers last night, and woke up at a nice 139. We thought we would be okay. After breakfast, Stella started to climb. And climb. And climb. We waited a reasonable amount of time to see if she would come back down. She didn’t.
There is one question I get asked more than any other, most often by families with a newly diagnosed child. “Does it get easier?”. While I like to remain positive, I also like to be as honest as possible. Here is my answer: It doesn’t get easier. you get better. Let me explain
Once again we spent an amazing weekend at a rally competition with some of our Canine Hope friends, competing for our second title, RA (Rally Advanced) and once we got that on Friday, we moved up to Rally Excellent and got 2 of the 3 required legs towards that. My daughter and her dog Raven had a very successful weekend, racking up a 1st, 2nd, and 3rd place in her 3 events. More »