Back CameraWhat does living with diabetes mean? How do you explain it to someone that doesn’t get it? How do you convey the seriousness of it when your child LOOKS healthy, acts fine, and the rest of the world would have you believe it is easily cured/fixed by diet and exercise?
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My daughter has an incurable disease. It is the 6th leading cause of death. And if you include “complications due to diabetes” it becomes third. The very medicine that is required for the diabetic to live, can also potentially kill them if given improperly. The common cold or flu for people without type 1 diabetes is a day or 2 off from work. For the diabetic it can often mean 4 days in the hospital hooked up to an IV. Low blood sugar is dangerous and potentially life threatening immediately. High blood sugar does damage to just about every bodily system and organ over time. We battle, we struggle to stay in between high and low all day. Every single day.

There is no such thing as a “repeatable outcome”. The same thing every day often produces radically different outcomes. Weather, stress, exercise, joy, excitement, growth, hormones, and EVERY. OTHER. POSSIBLE. THING. can cause changes to blood sugar. While many parents most relaxing part of their day is after they put their children to bed, the type 1 parents most stressful and worrisome part of their day starts. The fear and fright comes out after we put our children to bed.
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The frustration of realizing that most general medical practitioners know less about this disease than a type 1 diabetic causes stress and creates issues, occasionally leading to a misdiagnosis and death. Knowing that a simple 5 second, $1.00 BG test could prevent that is a source of constant frustration. The constant barrage of people offering up cures and telling you how to fix it due to misunderstood, confused, and sometimes ignorant ideas of what diabetes is, often times leads to an awful need to scream at the top of your lungs and refrain from smacking people in the face.

Diabetes infiltrates lives in every possible way imaginable. It is a factor in just about every single decision made through out the day. It limits spontaneity, constantly requiring planning. Little surprises are no longer welcomed or “thoughtful”, they lead to stress and often feeling like a bad parent. School parties, birthday parties, grandmas homemade apple pie, they all become the bane of your existence.

Having to do math. Even at 2:14 in the morning.

You know that feeling when you wake up and realize your slept through your alarm, and now your late for work? Imagine having that in addition to realizing you slept through checking your child’s blood sugar after falling asleep while treating a low, and now worrying whether or not when you go in there she is still breathing.

Yeah. It’s like that.

This doesn’t even really scratch the surface. Sometimes it’s just easier to say diabetes sucks. We need a cure.

Team Blackdogsrule

http://www.pasta-recipes.com

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5 Comments

  1. Diabetes does suck! I hate it every day … some days more than others ..today is one of those days. Thanks for doing all you do to raise awareness of this nasty disease.

  2. Diabetes does suck! I hate it every day … some days more than others ..today is one of those days. Thanks for doing all you do to raise awareness of this nasty disease.

  3. This is so great! It so true what you wrote, and being the caregiver for the child with T1 is so difficult. I especially relate to your comments about how frustrating it can be with the Doctors who don’t live this everyday. Wonderfully written! I would love to share this on my blog if possible, as I find your viewpoint spot on to what living with this truly feels like. http://www.thediabeticjournal.org . I have a 21 month old son who has T1 and was diagnosed 3 months ago. Thank you for your view point and for writing this. Please email me and let me know if sharing this link on my blog would be alright. Hang in there, thank you for being the voice for us T1 moms!

    • Yes, THANK YOU! My baby was diagnosed at 14 months and for 2 years now I haven’t had the time nor energy to think about how to explain this

  4. Pingback: Wonderful Perspective From Fellow D-Blogger | The Diabetic Journal

  5. I should have written parents, instead of T1 moms, so to correct my mishap, thank you for so eloquently describing what us T1 Parents go through. Poor assumption on my part this morning! 🙂

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