Earlier today on my Facebook page, I asked you what myths you hated hearing.That made you cringe. And you came through in spades. Sorry about the ugly formatting, this is a straight copy/paste from Facebook.
A Guardian Angel for Stella · 3,321 like this
Okay type 1’s and type 1 parents. We all know the myths. We cringe when we hear them. And every time we get an email or a facebook post from a friend, family member, or an acquaintance about some “miracle cure”, every time we see Roger Bezanis’ name pop up, every time we hear about cinnamon or running a lap, every time someone says “maybe she should skip the doughnut”, a little piece of us dies inside. We want to scream. Here is your chance. Tell me what you are tired of hearing. Tell us right here what you want every one to know. Scream it if it helps. But get it out. Lets debunk ALL the myths. Go!
-
-
Sara Thornton I don’t know if it’s so much a myth or not, but I’m tired of being told and treated like it’s no big deal. Like I can just drop everything on a moments notice and go off somewhere without a great deal of planning and supplies.-
A Guardian Angel for Stella Yes Sara, that ABSOLUTELY counts.
-
-
Carole Markhoff Matheny ‘If you had just listened to me 4 years ago when I told you to start M on Vit D he wouldn’t have gotten this. I’m feeding my kid Vit D so she doesn’t get T1D like your son got, cause you didn’t listen to me.’-
-
-
Carole Markhoff Matheny Yea, have not spoken to her since. I don’t *need* friends like that.
-
-
-
Michelle Gonzalez “I know someone with type 1 and they have it under complete control”, “She has to wear an insulin pump? She must have it really bad!” -
Lori Mayfield I have heard or been told most of these comments (awwww, the life of a T1 & their family) but the one I think that was hardest for me……I have a great relationship with my Lord & Savior. I believe we live in a sinful world & if no cure is found here…See More -
Dorrie Nuttall High blood sugar – gets the comment “What did you feed him?!” -
Sara Thornton “Good thing you can’t feel those pokes any more.”
-
Heather Martire Kitts Said in front of my then 4 yo T1, ” oh, she must have the bad kind if she gets shots. That’s hard. My neighbors brother had it & DIED from it. ” yes, thank you for telling that to my 4 yo!!!!! -
Hellen Root Dieting will make my 4 year old son better. A boy who already is low end of the weight charts. -
Lori Mayfield One for my husband….he use to order his coffee with extra Carmel, one day the barista asked him if he wanted enough carmel to kill a diabetic. He walked out, without his drink & never ordered one again!
-
Sara Thornton Well said Lori !
-
Kara Barton Susie our dd had a sub for pe tell her she couldn’t go to the office so she walked off the field and told the principal. Thankful the principal went directly out there and resolved that. I have a paper specifically for subs to get brief but life saving info about T1 but that one didn’t think it was important enough to read
I love when people think exercise will “fix” her “control”. -
Kara Barton “You can’t eat candy or you’ll end up dying like”… Well he has type 2 and is 85 so give the man a break and she doesn’t have type 2!!!
-
Dorrie Nuttall http://youtu.be/1Evwgu369Jw
I’m going to have this downloaded and ready to go on my phone 24/7. It’s a good reminder for everyone I think including myself.
What is the best way to ease someone’s pain and suffering? In this beautifully a…See More -
Erin Gressett Plunkett “How’s the diabetes? Y’all got it under control yet?”-
A Guardian Angel for Stella Can i just tell you how much I HATE the word control? grrrrr
-
-
Carole Markhoff Matheny Oh my, I hear that all the time! Where’s that dislike button?
-
Heather Perry this is the one that irks me the MOST!
-
-
-
Erin Gressett Plunkett It makes me homicidal for people to make jokes about diabetes. At a restaurant in New Orleans, I ordered sweet tea (yes I’m southern if y’all couldn’t tell..ha!) and when I got it, I commented that it was WAY to sweet, almost syrupy. And the waiter said “tastes like a big glass of diabetes”
-
A Guardian Angel for Stella Is the waiter still alive?
-
-
Nelly Guajardo CONTROL!-
A Guardian Angel for Stella that is a four letter word
-
-
HF Carraway I didn’t know anything about Type 1 before October so I can appreciate that some hurtful things are said out of ignorance by people who are trying to be kind. But some are truly being dismissive in that they think I’m overreacting and that is truly hu…See More-
A Guardian Angel for Stella Empathy. It’s all we want. Not sympathy.
-
-
Erin Gressett Plunkett Oh the sugar-free stuff. Bless their hearts. I honestly do believe some people have good intentions but just lack the knowledge.
-
A Guardian Angel for Stella And sometimes the carb count in sugar free stuff is more than the regular stuff!
-
-
Nelly Guajardo Who is RB and what is his deal? I have a feeling what you say gonna be bad and irritating.
-
A Guardian Angel for Stella roger bezanis. He is a Raw Food guy that says diabetes can be cured by diet, and that MD’s use diabetes to make money
-
-
Missy Davis The list is long, but hearing that it will get better in time has to be my big one right now, after our 2nd son was diagnosed last week with T1D I also kept hearing, well at least he knows what’s going on because his big brother has already gone through it. REALLY?? Umm..NO, it’s new to HIM, it’s scary to HIM, and he still has to find HIS own way through it.-
A Guardian Angel for Stella Big hugs to you and the family Missy Davis
-
-
A Guardian Angel for Stella “Well, at least you don’t have….” said by the perfectly healthy person
-
2 Replies · 7 hours ago
-
-
A Guardian Angel for Stella I bought sugar free cookies for your daughter!
-
A Guardian Angel for Stella “but she takes insulin, right? So why isn’t it under control?”
-
Abby Burch “You’re too young/skinny to be diabetic.”-
Carole Markhoff Matheny Heard that one about my son too.
-
-
Erin Gressett Plunkett Amen!! “At least it’s not cancer”. A close friend said that to me while we were still hospitalized at diagnosis and it still stings!!
-
Abby Burch “You drink diet soda? Don’t you know aspertame causes cancer?”
-
Erin Gressett Plunkett “Can’t he just stop eating sugar? Or carbs? Put him on the Atkins diet, then maybe he could stop taking shots”
-
Callie Baldwin “I could never take all those shots, I hate needles!” Yes. I love them. And you would or you’d die. -
Erin Gressett Plunkett “Doesn’t his pump control everything? I mean it shouldn’t be a big deal since he got a pump”
-
Nelly Guajardo Did he eat alot of candy is that why he got this.
Do a lot of people in your family have it? Is it hereditary? …See More -
Ashley Helman I was clueless before my daughter was diagnosed so I can’t be too judgemental. I enjoy the opportunity to educate anyone who asks, assumes, or ‘read about’ T1. I do sometimes wish it was taken more serious…. -
Erin Gressett Plunkett “Omg I could NEVER poke my kid with needles all day”
Or they make a big deal out of it and have to turn their head or leave the room when I check his sugar. -
Callie Baldwin “I don’t understand why you can’t control it, how hard can it be?”
-
Erin Gressett Plunkett “At least he got it when he was so young…he doesn’t know what he’s missing…it’s the only life he’s ever known”
-
Lisa Raines Stratton Isn’t her bloodsugar under control yet?? -
Andrada Popescu I know what you’re going through, my cousin’s neighbor cat has diabetes too. -
Jessica Heintzman I hate when everyone thinks they need to know his sugar readings! Then they gasp if its high or low then say ohh that’s bad! Like I didn’t already know that or it my fault!! Then suggest to me what to do.. Drives me nuts!!!! -
Audra Smith Or
“You don’t look sick. You can come to class/do whatever prior commitment.” Little do you know, I’m trying to avoid the ER right now and I haven’t slept in days! -
Erin Gressett Plunkett “I know he can’t eat these cookies I baked, so what can I feed him?”
-
Audra Smith “Here, drink this okra water/eat healthy and workout and I promise your diabetes will go away completely!”
-
Abby Burch “Take care of yourself or you’ll loose a leg like my grandma.”
-
Sabrina Trembley Someone unfriended me on FB because I was “so ignorant” and wouldn’t look at her links for an herbal cure. You just have to laugh. -
Amber Tavis “He’s so young! He’ll grow out of it, right?” Ugh. -
Erin Gressett Plunkett “Is it the bad kind?”
-
Tara Neill “Well maybe if you hadn’t eaten too much sugar as a child, you wouldn’t be diabetic.” (This one makes me so mad) -
Erin Gressett Plunkett Audra Smith, someone posted the okra thing on my fb wall last week…it took MUCH restraint to stay quiet. I just deleted it.
-
Abby Burch “There’s cookies in the break room, but I know you can’t have them, so…” My boss, ALL THE TIME.
-
-
Erin Gressett Plunkett We are very blessed to have people in our lives who are willing to learn and aren’t scared of taking care of him. Because let’s face it, diabetes is a big deal. But I can’t stand it when someone asks to take him somewhere, etc and when I start talking about diabetes, they get the crazy-eyes and pretty much just say “never mind”
And then the other side of that is the people who act like its no big deal and they know how to take care of him because their great-aunt Bertha had diabetes and they watched her prick her finger once a day. -
Jenny Falter Mattingly “Why is your daughter so brittle?” Asked by a nurse coworker after hearing of some of my daughters highs & lows. -
Andrada Popescu his endo reviewing his numbers: he rarely is low at night why do you still test him every night? doesn’t he wake up to tell you if he’s low?
-
Amber Jones Oh yeah and, “Does he have it bad?”I realize this week has been kinda moany and groany. Next week we will be back with pictures of cute puppy dogs, I swear. 😉Team Blackdogsrule
When we are sitting Down for dinner with my in laws and they say to me, “are you watching what he’s eating?” Seriously?!??!?? I just want to throw something at them!!!!